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Today marks a major milestone for one of our patients, who has successfully had their feeding tube removed!

We shared their inspiring story with you recently, and we’re thrilled to provide this update on their remarkable progress.

“Today’s coffee toast is truly a miracle! A patient who is battling a rare, genetic disease that causes progressive muscle weakness, affecting approximately 2 in every 100,000 people in the United States has defied the odds! The patient came to us with a feeding tube and an inability to swallow their own saliva. They had to suction their own secretions all day and all night long and were only getting fo